NextGen Patient Expert Programme – Pre-Course Reflection NextGen Patient Expert Programme – Pre-Course Reflection Updates Thank you for joining the NextGenPatient Expert Programme. This short questionnaire helps us understand where everyone is starting from before the programme begins.There are no right or wrong answers.Please answer based on what you currently think or feel.Basic InformationFirst NameLast NameUnderstanding Patient Expertise Many people have never heard the term “patient expert” before. We are curious about your first thoughts.What do you think a “patient expert” is? (Open answer)What do you think patient experts do? (Open answer)Healthcare & SystemsBefore starting this programme, how familiar are you with the idea that patients can help improve healthcare services or systems? Not familiar at all Slightly familiar Somewhat familiar Familiar Very familiar Not sure yetConfidenceHow confident do you currently feel about sharing your experiences to help improve healthcare or services? Not confident at all Slightly confident Somewhat confident Confident Very confident Not sure yetHow confident do you feel speaking with professionals (for example doctors, healthcare staff, organisations, or decision-makers) about patient experiences? Not confident at all Slightly confident Somewhat confident Confident Very confident Not sure yetHow confident do you feel sharing your ideas in group discussions or working with others on projects? Not confident at all Slightly confident Somewhat confident Confident Very confident Not sure yetConnection & Community Living with a health condition can sometimes feel isolating for people.How connected do you currently feel to other people who have similar health experiences to you? Not connected at all Slightly connected Somewhat connected Connected Very connectedHow often do you feel that people around you understand what you are going through? Rarely Sometimes Often Most of the time AlwaysUnderstanding GapTo what extent do you feel that people without disabilities or chronic illness understand the experiences of those who live with them? Not at all Slightly Somewhat Mostly Completely Not sureSupport & WellbeingHow supported do you currently feel in your journey with your health or condition? Not supported at all Slightly supported Somewhat supported Supported Very supportedWhen you think about the future, how hopeful do you feel about using your experiences to help others or create change? Not hopeful Slightly hopeful Somewhat hopeful Hopeful Very hopeful Not sure yetSense of DirectionHow clear do you currently feel about how your experiences could contribute to positive change? Not clear at all Slightly clear Somewhat clear Clear Very clear Not sure yetSubmit
